m00se

Remember the video on you tube about Jessica the hippo?

I’m watching a documentary on Animal Planet about her. Narrated by John Waters.

That is all.

To whom it may concern,

I am writing to relay my experience at Washington Hospital Center on the December 20th-21st.

I was scheduled to have the 3rd step of my breast reconstruction with my plastic surgeon, Dr. Susan Otero, after being diagnosed with breast cancer in 2006 and undergoing two mastectomies at another hospital in 2007. Prior to my surgery date the WHC staff called me for my pre-op check-in and were also very attentive during the check-in process at the hospital. I was very pleased with the treatment and care I received prior to surgery and post-op during my recovery. Three nurses in particular, Birdie, Claudia, and Joan provided me with very high quality care. I was very pleased with the treatment I received in recovery.

However, the first major problem came when my initial recovery nurse, Birdie, called repeatedly to find me a room. My surgery was over between 2-3pm, and I recall being fully awake and able to be moved to a room around 5pm. Around 8pm I was moved to a different, larger recovery area and put under the care of Joan and Claudia, and told that I would be moved to my own room soon. After over a four hour total wait, I was finally transferred to my own room around 9:30pm.

By this time I had missed all the meal times and was hungry and tired and wanted to be in my own room, which should have been much quieter than the hustle and bustle of the recovery area. When I finally got to my room I was checked in and asked about getting food of some kind. I was told that the meal times were over. I pressed the issue as I was very hungry, not nauseous in any way, and definitely feeling up to eating a small meal. I was told that a boxed lunch could be ordered for me. In the interim, my nurse brought a large cup of juice.

Around midnight no food had arrived and it had been about four hours since I had received pain medication. Around 12:30 when my nurse, Jillian, came into my room I told her that my pain was increasing and asked for more pain medication as well as lozenges for my throat which was very sore after being intubated. She said she would order the medication and told me that no meal had been brought. She eventually found some cereal and milk for me, which was kind of her, as the food that was ordered apparently never arrived.

At approximately 1:30 I received throat lozenges. Around 2:30am I still had not received any more pain medication and my incisions felt like they were on fire. It was almost impossible for me to rest. I had not been seriously uncomfortable post-op until around midnight when I had asked for the medication and as I stated before, had been very well cared for. In recovery I was asked about my level of pain and the nurses responded appropriately. Therefore I went from being very comfortable to being in an unacceptable amount of pain for an extended period of time even though I knew that my surgeon had ordered Vicoden for me during my recovery in the hospital. I paged my nurse. She said that the drugs hadn’t arrived from the pharmacy yet but if they didn’t arrive in 10 minutes she would go check on them herself. About 15 minutes later she came with the pain medication, apologized and she told me that it would probably take me two cycles of drugs to really feel better since the drugs I had received so much earlier were almost completely out of my system.

Around 6am my surgeon arrived and told me that I would be discharged that day, which I had expected. My nurse followed shortly thereafter and brought another round of medication. I was feeling much better by then and was awaiting breakfast since I had yet to really eat anything. When breakfast did arrive, I discovered chicken broth, jello, and more juice even though I had already eaten solid food and had requested a vegetarian meal. I was not able to eat any of the food that was brought for me. I paged a nurse and a tech arrived. When I told him about the problem, he got the person who was delivering the meals and explained the situation. The delivery person said that he had an extra breakfast and would bring it to me. It never arrived. By this time I wasn’t surprised and simply wanted to get out of the hospital so I could recover properly.

I am amazed that I was able to receive both the best and the worst care I have ever had in a hospital at the same facility in 24 hours. My diagnosis has necessitated six surgeries in the past 14 months and I have never had to wait so long for medication or food in any hospital – especially things prescribed for me by my doctor and/or things that I could have had at home. I would have fared far better if I had left the hospital and gone home after my time in the recovery area, which is unacceptable. I am at a loss as to the reason why I was not able to get the medication prescribed for me, in the hospital. Considering that during previous recoveries in other hospitals I had serious issues with nausea and required far more pain medication, my experience at WHC does not make me feel confident that it could provide me with a level of care that would keep me well and comfortable. If it was so difficult to get the medication specifically prescribed for me, I can only assume that if I became nauseous or needed a non-prescribed drug right away there was no way I would have gotten it.

While I appreciate the kindness and dedication of the majority of the WHC staff which I came into contact with, overall I am appalled by my experience there. As portions of the WHC were rated among the US’s best this year, I have to believe that I experienced huge flaws in an otherwise well-functioning system. Nonetheless, I consider my experience to be unacceptable and I feel I would be remiss if I did not relay the details of my situation in the hopes that the system can improve and others can enjoy at least a modicum of good quality care that was missing in the majority of my experience at WHC.

yoda does christmas

Originally uploaded by l@in.

A shopping trip to 5 stores covering Annendale and Falls Church, looking for a small Christmas tree with clear lights resulted in a new turtle light, various paper products, various ornaments and other holiday accoutriments, a new pair of holiday slippers with penguins on them (for the hospital), 1 hello kitty stocking (for Oliver), 1 cookie monster stocking (for Joanna), and 1 Yoda stocking (for me) as well as the new season of Big Love.

Then we came home and ordered a Christmas tree and stocking holders online, because all the trees in the store were hideous, or over 6 foot tall, or intended for the outdoors. So much for 4 hours of suburban shopping.

…or at least sandwich meat.

Via DCist - have you heard about the sandwich scandal? Of course the congressperson in question is from Indiana.

Shocker!

Joanna thinks that a campaign should be started to send Congressman Souder (R) a grilled (not toasted) sandwich every day. Now, where can I send a campaign donation for that?

Joanna pointed this article out to me yesterday. While old school Sesame Street is being released on DVD it comes with a disclaimer. From the NY Times article,

According to an earnest warning on Volumes 1 and 2, “Sesame Street: Old School” is adults-only: “These early ‘Sesame Street’ episodes are intended for grown-ups, and may not suit the needs of today’s preschool child.”

Just for the record, my favorite character was oscar the grouch and i loved the alistar cookie bit.

*sigh*

This post about a search for “social network analysis” while having lunch at a Panera Bread cafe is kind of ridiculous/hilarious.

It is a good example of why blocking of certain potentially unsavory sites or searches which might lead to that kind of site rarely does what you want it to, and is almost never worth the money.

This can’t be real, right?

Warner Bros president of production Jeff Robinov has made a new decree that “We are no longer doing movies with women in the lead”.

it occurs to me that no one would ever respond to a person who’s face had been disfigured in, what say, a car accident that at least they got a free face lift out of it. however the “at least you got a free boob job” seems to be a surprisingly frequent response to women who’ve had reconstruction after breast cancer.

fortunately no one has ever actually said this to me within my range of hearing or in conversation, but if they did, i promise that my response would not be pretty.

Diacetyl, a chemical most commonly used in microwave popcorn is finally getting the bad press it deserves and its use is being discontinued by some companies. Expect more to follow.

• My previous post about diacetyl
• As covered buy the Toronto Star
• Wired News
• The In the New York Times

Sometimes I wonder how I got cancer, then I wonder why I waste my time….